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"One in 10 Americans are living with a rare disease, but less than 10% of all rare diseases have an approved treatment option," Sen.
Bob Casey says in a press release.
"It is important we do all we can to improve access to innovative health care optionsespecially for children."
That's why the Pennsylvania Democrat and Oklahoma Sen.
Markwayne Mullin have introduced the Creating Hope Reauthorization Act, which would extend the FDA's Rare Pediatric Disease Priority Review Voucher program for another 15 years.
Under the program, the FDA issues " vouchers" to pharmaceutical companies to speed up the review and approval of new treatments for children with rare diseases.
Since its creation in 2012, the PRV has awarded 53 vouchers for 39 rare diseases that have led to treatments that have helped more than 200,000 patients, the press release notes.
The PRV program "has been a lifeline for hundreds of thousands of children living with rare medical conditions," Mullin says in the release.
"Over the past decade, the Rare Pediatric Disease (RPD) Priority Review Voucher (PRV) program has successfully helped incentivize and expedite the development of new treatments and cures for young children with rare conditions including pediatric cancer and rare genetic disorders," he adds.
The program "helps speed the development of new treatments
Selected Grant News Headlines
A customized collection of grant news from foundations and the federal government from around the Web.
The initiative saw ZTE donate essential supplies and digital connectivity solutions worth 1 million THB to a Public charity organization, Baan Nokkamin Foundation.This foundation provides foster...more
13-year-old Ricky was diagnosed with leukemia for the second time in his young life.Traditional medications were failing, and Ricky's doctor dismissed the recently approved stem cell treatments...more
Notably, this was the first Children's Entrepreneur Market event held in the country.HATCH Fest honored Juneteenth with three public readings of the Emancipation Proclamation by local community...more
Sit Still Kids Salon Opens in Atlanta's Peachtree Battle neighborhood.Salons specifically designed for children are evolving to provide tailored services for kids with diverse needs.Businesses are...more
IDEA Bridge and IDEA Innovation, which opened in 2018, had more than 1,900 students enrolled in grades kindergarten to 12 at the time they called it quits.Colorado-based Third Futures Schools...more
'Safety, compassion, innovation': Beaufort Memorial honors top staff at Bemmy Awards.The Quality Services department took home the award for Department of the Year at BeaufortMemorial Hospital's...more
This ranking recognizes the leading children's hospitals in the U.S., featuring the top 50 hospitals.Cleveland Clinic Children's placed in all eight pediatric subspecialities: Cardiology and Cardiac...more
Mackinac Policy Conference left early childhood education off this year's agenda.By 2027, make Detroit a city that puts young children and families first, says James Ribbron, executive director of...more
Investing in tech to help children and communities thrive | Takeda Stories.How our Global CSR Program helped empower diverse entrepreneurs to innovate health solutions.29 Digital public goods...more
Greg Bourke is the author of "Gay, Catholic, and American: My Legal Battle for Marriage Equality and Inclusion" Bourke spoke at the Yale School of Management's Social Impact Lab.Bourke's final advice...more
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In the world of social enterprises, failure is a cringe-worthy moment nobody wants to talk about. But, social entrepreneurs can benefit from their failures.
