Casey, Mullin Introduce Bipartisan Bill to Spur Development of New Drugs to Treat Rare ...


credit: aei-ideas

"One in 10 Americans are living with a rare disease, but less than 10% of all rare diseases have an approved treatment option," Sen.

Bob Casey says in a press release.

"It is important we do all we can to improve access to innovative health care optionsespecially for children."

That's why the Pennsylvania Democrat and Oklahoma Sen.

Markwayne Mullin have introduced the Creating Hope Reauthorization Act, which would extend the FDA's Rare Pediatric Disease Priority Review Voucher program for another 15 years.

Under the program, the FDA issues " vouchers" to pharmaceutical companies to speed up the review and approval of new treatments for children with rare diseases.

Since its creation in 2012, the PRV has awarded 53 vouchers for 39 rare diseases that have led to treatments that have helped more than 200,000 patients, the press release notes.

The PRV program "has been a lifeline for hundreds of thousands of children living with rare medical conditions," Mullin says in the release.

"Over the past decade, the Rare Pediatric Disease (RPD) Priority Review Voucher (PRV) program has successfully helped incentivize and expedite the development of new treatments and cures for young children with rare conditions including pediatric cancer and rare genetic disorders," he adds.

The program "helps speed the development of new treatments

Read the Entire Article


Selected Grant News Headlines

A customized collection of grant news from foundations and the federal government from around the Web.

Walnut Coding Supports "Programming the Future" Event in Chengdu, Popularizing Ai ...

A 5-year-old Chinese boy is being called "China's Elon Musk" after he programmed a character to catch thieves, Quartz reports. According to China's People's Daily Online, Junyi Zhang created the...more

3 Houston Health Tech Innovators to Know This Week

Howard Berman is the CEO and co-founder of Coya Therapeutics, a Houston biotech company focused on Alzheimer's and other neurodegenerative diseases. But when Berman's father was diagnosed with...more

Close to $15 Million in Funding Available for Innovative Outreach That Connects More ...

The Women, Infants, and Children (WIC) nutrition program, which provides food for pregnant women, breastfeeding mothers, and children up to age 5, has been shown to provide "wide-ranging benefits,"...more

Learnroll Llc Joins Innovators Network at American Heart Association Center for ...

"As a woman founder with early cardiovascular risk, I am acutely aware of the urgent need to address women's healthcare, particularly in cardiovascular risk areas." That's the message fromELLE...more

Top Themes from the National Child Care Innovation Summit

"I'm here because child care is not only a social issue or a women's issue. It is also an economic issue," Secretary of Commerce Gina Raimondo said last week as she kicked off the National Child...more

Foundation Engages Innovation Techniques on Low-Performing Pupils

A foundation in Nigeria is using board games and talking books to improve the education of children who attend government-owned schools. Teach the Child Initiative founder Pearl Utuk, who spoke...more

For the First Time as a Mother: Bar Zomer'S New Collection

Bar Zomer recently gave birth to her first child, a daughter, and she's making headlines for another reason as well: She's the face of Israeli baby and children's fashion brand Minna. In a press...more

Bridging Gaps + Building Futures: Compugen Partners with Sun Youth for Inclusive Education

"We are incredibly grateful for Compugen's donation, which will greatly enhance our tutoring and mentorship programs," Johanne Saltarelli, executive director of Montreal's Sun Youth, says in a press...more

Fixing The Office Noise Problem, Talking Child Care With Commerce And More

Facebook is facing a proposed class-action lawsuit filed by a software engineer who says the company refused to hire him because it preferred to hire noncitizens with H-1B visas, the Los Angeles...more

Kentucky Child Care and Workforce Successes Highlighted at National Summit

The US Chamber of Commerce and the US Department of Commerce Foundation hosted the first-ever National Child Care Innovation Summit last week in Washington, DC, to discuss how governments and...more


Children News from...




Social Entrepreneurship
Spotlight



New Age of Philanthropy: #GivingTuesday


A part of a series produced by The Huffington Post in celebration of #GivingTuesday, which will take place this year on December 3, Kathy Calvin and Henry Timms vouch that we are living in a new era of philanthropy.



Federal Government Grant and Assistance Programs


TRIO_Upward Bound | Affordable Care Act (ACA) Maternal, Infant, and Early Childhood Home Visiting Program | Healthy Communities Grant Program | Consultation Agreements | Preventive Health and Health Services Block Grant | Manufactured Home Construction and Safety Standards | Law Enforcement Training and Technical Assistance | Community Development Block Grants/State"s program and Non-Entitlement Grants in Hawaii | | Site Style by YAML | Grants.gov | Grants | Grants News | Sitemap | Privacy Policy

Edited by: Michael Saunders

© 2008-2024 Copyright Michael Saunders