Home
Funding Areas
About Us
"One in 10 Americans are living with a rare disease, but less than 10% of all rare diseases have an approved treatment option," Sen.
Bob Casey says in a press release.
"It is important we do all we can to improve access to innovative health care optionsespecially for children."
That's why the Pennsylvania Democrat and Oklahoma Sen.
Markwayne Mullin have introduced the Creating Hope Reauthorization Act, which would extend the FDA's Rare Pediatric Disease Priority Review Voucher program for another 15 years.
Under the program, the FDA issues " vouchers" to pharmaceutical companies to speed up the review and approval of new treatments for children with rare diseases.
Since its creation in 2012, the PRV has awarded 53 vouchers for 39 rare diseases that have led to treatments that have helped more than 200,000 patients, the press release notes.
The PRV program "has been a lifeline for hundreds of thousands of children living with rare medical conditions," Mullin says in the release.
"Over the past decade, the Rare Pediatric Disease (RPD) Priority Review Voucher (PRV) program has successfully helped incentivize and expedite the development of new treatments and cures for young children with rare conditions including pediatric cancer and rare genetic disorders," he adds.
The program "helps speed the development of new treatments
Selected Grant News Headlines
A customized collection of grant news from foundations and the federal government from around the Web.
The British Columbia school-based vision exam pilot program represents a significant step toward improving children's eye health and academic performance.The initiative addresses two critical issues ...more
The Promise of Home campaign included the largest gift commitment in Crossnore's history, an $8 million anonymous pledge.The actual amount raised was more than $53 million (130% of the campaign goal)...more
Testing approaches to child sexual abuse prevention through a new board game.1 in 5 women and 1 in 13 men report CSA experiences.Low- and middle-income countries often face challenges in implementing...more
The Week of the Young Child, April 7-11, will be celebrated at USU with campus-wide and statewide activities for the young children it serves.For Sarah Weese, social work isn't just a career choice ...more
A New Starbucks in Osaka features a Kids Bar where kids can customize their own mini Frappuccinos with toppings and sauces.The development of non-caffeinated drinks specifically for children...more
Our expertise is in covering local stories that matter most to the Park City community.Submit a news tip, Share a photo or video, or contact TownLift with your local Park City news and feedback.Join...more
Minister of Youth Affairs Launches 'Bake Box by Little Chefs' A Sweet Taste of Bahraini Innovation.Rawan bint Najeeb Tawfiqi attended the launch event of the platform and product.Jouri, Maria, and...more
Noah Sorin is transforming how children learn about sustainability through his startup, Idori.The company produces educational children's books, eco-friendly plush toys, and learning materials.Idori...more
Vipo.AI is an innovative application that brings professional-level parenting guidance directly to families' smartphones.The app offers parents two primary features: they can record an actual play...more
They contain no added sugar, sweeteners or artificial flavours, and count as one of the recommended five portions of fruit and vegetables per day.Both variants are available in 200m cartons and will...more
Social Entrepreneurship
Spotlight
Google Invests $103 Million in Latest Renewable Energy Project
Google’s latest investment is $103 million in a 265.7 megawatt (MW) solar project in Southern California.
