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When Jim Raffone founded the JAR of Hope in 2013 after his 4-year-old son was diagnosed with Duchenne muscular dystrophy, the New Jersey man's first move was to climb Mount Everest.
"We can't really hold traditional fund-raising events because of COVID," he tells the Asbury Park Press.
"So we have to come up with new ways to let people know these kids will die unless we find a cure."
One of those ways was to climb Everest, and in May, the 51-year-old did just that.
Now, another way: CKO Freehold will hold its "Kickboxing Marathon" on Dec.
3, with 26 three-minute rounds and a minute between each, to raise money for Duchenne research.
More than 35 people have already signed up, each pledging to raise at least $100.
Raffone's son, James, is 13 and has lost the ability to walk.
"It's a challenge raising funds to cure a disease that most people have never heard of," Raffone says.
"But to us, that's all the more reason to keep trying."
Selected Grant News Headlines
A customized collection of grant news from foundations and the federal government from around the Web.
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Tesla plans to deploy a small fleet of robotaxis in Austin in the coming weeks.Tesla FSD 13.2.9 will still run a kid down while illegally blowing past a stopped school bus with red lights flashing...more
Awarded funding will support a wide range of activities between now and September 30, 2025.The FCCN initiative, supported by $85,000 in grant funding, will help build and sustain a Family Child Care...more
The Delivering Innovative Vocational Education through Virtual Reality Technology new workforce training program aimed at preparing individuals with disabilities for the program.DIVE-VRT delivers...more
Children are growing up surrounded by screens, apps, and smart devices.Being intentional about tech use goes a long way toward deepening interest in tech and creating meaningful experiences.Creating...more
Safeguarding innovation and trade secrets in American AI leadership Safeguarded innovation andtrade secrets in U.S.AI leadership.Testimony was given before the House Judiciary Subcommittee on Courts,...more
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